Showing posts with label PEG. Show all posts
Showing posts with label PEG. Show all posts

Tuesday, 21 December 2021

The question is how you react

This post does relate to writing but I'm going off on a tangent first. Please bear with me. 

My feed

It is easy for me to become self-reflective at this time of year. Those who know me well know this story but there is a reason behind retelling it. You see twenty-one years ago this month I had surgery to help stop reflux that my body didn't respond well to. I woke up from the anaesthetic unable to eat properly. Twenty years ago this month I had PEG tube fitted. I am not going to give the long name for it, but basically, it is a tube directly into my stomach through which I can pump nutrition. It saved my life but it also meant I was deemed disabled. 

When I say I am a disabled author people see the crutches I use and assume it is connected with my joints. They are just a secondary issue. The tube in my stomach is, in fact, my disability. 

Why am I telling you this? There is a good reason I promise you. Recently I have been reading a book by Jake Humphrey's and Damian Hughes entitled High Performance. I always like to occasionally read books like this because you never know what you can share with your students. Something I read in there reminded me of the time following the surgery and the years afterwards. In the book, it talks about how you react to setbacks can make all the difference and this is your responsibility. 


After the surgery, I was very ill until the PEG was fitted. At the time, I was a single parent with three children aged 15, 13 and 11 who ran her. own business. Things could not be more difficult. I lost my business because I was too ill to work. I'd lost my identity or so it felt. I could easily have given up. The doctors even expected me to do that. But, I refused to. This was no one's fault and how I reacted was my responsibility. This was not the first time I'd had to start my life again. I'd been divorced when the children were very small and I knew I could do it again. 

People couldn't understand why I wasn't angry. But angry at who? Anger is so destructive. I couldn't change things. I had to focus on a new life and make sure my children and my mother who I cared for, were all right. The rest is history. I went to university and found a passion for learning. I ended up with a PhD became a lecturer and most importantly fulfilled my dream of becoming an author. You might think this sounds glib. Perhaps even that I make it sound easy. It was not. I had family around me. They were my tribe who supported me through the tough times and there were plenty of those which I'm not going to dwell on.

Please don't get me wrong as well, this is not meant to be a 'woe is me' post. The day the surgery went wrong was actually a great day. It meant I could follow my dreams. I'd never have had the guts otherwise (excuse the pun).

Achieving my dream!

Tangent over. Let me bring it back to writing. Being a writer is so often about rejection in some form or another. From an agent, or a publisher, not winning this award or that award, not getting the film rights, not appearing at the literary festival. The list goes on and to some extent, it never stops throughout your writing career potentially. Our friend, social media can ensure that we are constantly reminded of others' successes. My point here is how you react to those setbacks and that is your responsibility as mentioned in the book. It is well worth reading it as they expand upon this. Whatever your reactions to those setbacks are ensure you have your tribe, your people, ready. They are the ones you can talk to in the tough times. 

When trying to get an agent, wear any rejections as a badge of honour. Pay attention to what is being said in the email/letter though. Is it useful? Do you feel they might have a point? If several agents are saying the same thing in their rejection letters then you need to pay attention. Also, remember that it is one person's opinion. In the same way, an agent can reject it, it can take only one agent to like it and start your journey to publication. 

If you follow me you know I will pull this quote out frequently. It is the one from Matt Haig's Notes on a Nervous Planet where he lists a single sentence 'do not compare yourself'. This is vital when thinking how you are going to react. This is your personal journey. Others may on the surface be succeeding in everything you want, but remember that is the edited social media version. What you don't know is what they are facing behind the scenes. They will be dealing with their own rejections and setbacks. 


As far as I am concerned the most important things are to focus on you, your journey and how you react to situations while making sure you are supportive and kind to others. 

Friday, 20 April 2012

Get the writing going

In my last post I was talking about how difficult I was finding it to write because I was marking so much, the words just seemed obliterated. However, I found a strange solution. I am co-writing a paper with a good friend on our relationship (or not) with food and as part of this I have to write a creative non fiction piece about how I felt when I could no longer eat. I haven't really thought about this for a while as it is just part of my life. Don't get me wrong it still has a major impact. I find it very difficult to travel without precise planning and long distance travelling is a huge problem. And it can very suddenly make me ill, which even now is embarrassing and I need to get away from people quickly - this happen recently when I was out with friends and had drunk more than I should (as in volume not amount of alcohol!!) and I was exceptionally tired so my body stopped working. The sense of panic and pain was almost unbearable and it is so difficult to explain because as you can see from the photo - I look fine. I don't look ill. It is a hidden disability.

Sorry I went off on a tangent then, as I said for this paper I have to write this creative non fiction piece. I started to splurge on the page how I felt when the surgery first went wrong (by the way I don't have a gastric band - none of this was by choice). The implications of not being able to eat goes way beyond nutrition. Much of our social life is based around it and all the emotions relating to this flowed onto the page.  I had to dig quite deep as the original op was back in 2000 and I had my PEG (percutaneous endoscopic gastrostomy) fitted in 2001 which gave me my life back. My children were 15, 13 and 11 when this happened. It had a huge impact on them too and it was thinking about this that started to trigger the ideas and thoughts connected with the rewrites of Ham and Jam. Some of their reactions and incidents that happened at that time were inspirational.


I am a great advocate of free writing when you are feeling stuck (I don't believe in writer's block as such). I often get my students to empty what is in their heads onto the page as I was originally taught by Dr Neil McCaw in my first year at University. To just keep writing, don't stop, don't think about whether it makes sense or punctuate it. No one else, other than you - if you want to that is- will read it. Sometimes going back over it can give you images or ideas but the main idea is to clear the clutter out of your head. I have always done this without a purpose and it was, in the main, successful. However, with this piece I was splurging with a purpose. It was hugely cathartic and releasing. The words and ideas for  Ham and Jam consequently all started flowing again. I have never done free writing like this with a specific purpose but for me it seemed to be more successful than my normal free writing. If you are struggling maybe giving it a try. Think of something that happened in your past and write about it. Allow yourself the freedom to say whatever you want and remember to look at both sides of any situation.

Joni Mitchel from Both Sides Now because I love it and heard it today